“Coming to this group was a lifeline” – Young Onset Dementia Activist, Sue on GMTV this morning

Sue interviewed on ITV this morning
Pictured: Sue interviewed on ITV this morning

ITV invited our Young Onset Dementia Activists (YODAs) to highlight the challenges of living with dementia and push for more much-needed support like YODA across the country

Sue, a BLG Mind YODA, spoke up for people living with dementia on GMTV this morning. She explained that when she was diagnosed with dementia aged just 59, she told her GP that “she didn’t feel safe”. This all changed when she joined BLG Mind’s YODA group, which she describes as a “lifeline”  but, as ITV highlights, this type of support is all too rare and more funding is needed to support a growing number of people.

The clip explains, “New research suggests that dementia rates are rising a lot faster than previously thought and many more people will need support services like this one, which is run solely on donations”.

YODA is for anyone in the London boroughs of Bromley, Lewisham and Greenwich who has developed dementia before the age of 65. Family and friends who are carers are also welcome.

Members support each other and share experiences, which have included poetry writing, dancing, walking, lunches out and bowling. They are also involved in fundraising and raising awareness of young onset dementia.

Watch the full clip which aired this morning